Background

Approximately 1 in 6 children ages 3 to 17 have a disability. It is estimated that 10 to 20 million children and adolescents are living with a chronic medical or mental health condition. The average U.S. household has 2.3 children, resulting in over 40 millionsiblings being raised in homes with a child that has an illness or disability. The CDC has acknowledged that growing up in this type of family environment is an adverse childhood experience (ACE). ACEs place siblings at increased risk of experiencing a range of health and social challenges. Moreover, there is a major economic consequence associated with ACEs that is carried into adulthood. The US spends over $180 billion dollars on ACE-related adult health conditions each year which is costly to both businesses and the economy. 

Families caring for a child with an illness or disability can become overwhelmed by the enormous responsibilities associated with caring for their sick child. Siblings in these households can inadvertently feel unheard and overlooked. It is not uncommon for siblings to experience a range of emotions and lack the skills, outlets or support to help them mange their feelings.